A few words about us

  Brie

Brie is the granddaughter of Catrina and the daughter of Brandy, the co-founders of our organization. Brie was diagnosed with bilateral polymicrogyria when she was three weeks old. Brie, together with all those affected by PMG, are the inspiration for the PMG Awareness Organization in the hopes that one day we will find a cure. Until then, we will work together to bring about awareness, to support research, to educate the public, and to promote advocacy for all those who lives have been, or will be, affected. We hope you will join us in this mission.

Together, we can all make a difference!

 

Our vision

If you are reading this page, chances are a member of your family, a friend, or someone you care about has been touched by this disease. First of all, let us say that YOU ARE NOT ALONE! We are COMMITTED to bringing awareness of Polymicrogyria (PMG) and to offer support, education, resources, advocacy, and especially encouragement.
Our hope is to provide a comprehensive overview of polymicrogyria- what it means, current information on treatments, drugs, potential procedures, financial and social resources, the leading medical professionals and medical centers, therapists, alternative therapies, assistance with planning for the care of a child with special needs, where to find support groups, online support groups, and other organizations that offer help with other illness that might accompany the diagnosis of PMG (i.e., epilepsy, cerebral palsy, microcephaly, macrocephaly, etc.)
If this diagnosis is something new for you it is so important that you know that each individual is affected in a different way. While there may be some things that are commonly associated with PMG, it manifests itself differently in each person.
We invite you to check out the links listed here on the site. We welcome your input. We are NOT experts on PMG. This organization has been founded because of the direct impact of this diagnosis on our families. We found so little information and even less support. And so, we are in this together. Please feel free to email us with ideas, information, or questions. We will do our best to answer as quickly as possible. If you have ideas or information PLEASE feel free to share it with us. The more information and support we have, the better we can serve our loved ones.

Our Mission

The PMG Awareness Organization is an international non-profit organization of families, caregivers, and medical professionals who care about those with Polymicrogyria. Our mission is to promote awareness, diagnosis, and the treatment of Polymicrogyria through education, research, advocacy, and support for individuals with Polymicrogyria, their families, and other concerned parties.