Robin Hudson is our President and Chief Executive Officer. She is a proud stay-at-home mom to her son Sean. Sean was diagnosed with Microcephaly in utero but it wasn’t until age three that her and her husband learned that he also had Polymicrogyria. Through all the struggles and unanswered questions about his future, Robin has come to know that Sean is living proof that there is hope! Robin comes to us with experience in working with a nonprofit organization. She is truly dedicated to raising awareness of this disorder and finding ways to help other children and families who have been, or will be diagnosed in the coming days. Robin has been proudly serving on the Board of Directors since the organizations inception in 2012, and has held the position of President/CEO since 2015. She believes that “TOGETHER, we WILL unlock the Mysteries of PMG!”
Natalie Fregoso is our Vice President and Treasurer. She began serving on the board in 2014 as Secretary. She is a Legal Assistant for an estate planning law firm, wife and mother of two. Natalie could tell there was cause for concern for her youngest daughter, Gabrielle, when she was only four months of age. The family doctor wasn’t as concerned, but never doubt a mother’s intuition. Natalie kept voicing her concerns and was finally referred to a neurologist. The attentive neurologist immediately agreed with her concerns, did an MRI and Gabrielle was diagnosed with Bilateral Diffused Polymicrogyria in February of 2014. Gabrielle also suffers from hypotonia, developmental delays, Microcephaly and absent seizures. The family is very involved in their church and trust that standing together, and in prayer, we will unlock the mysteries of PMG.
Lindsay Latham is our Secretary and Co-Chair for the Director of Advocacy position. Lindsay has been active in advocacy work through her career in the theatre for over ten years. She is very excited to bring that passion to PMGA and hopes to not only help bring a voice to our families, but also help guide them in finding their own voice. Lindsay is passionate about reaching out to our local communities and working with our leaders to make sure that the special needs community is heard and is being represented. Lindsay became active with PMGA after her son was diagnosed with Bilateral Frontoparietal Polymicrogyria in June of 2015 at the age of fourteen months. With the help of a huge support team, he is making great strides every day. In addition to being on the PMGA Board, she is also working with other special needs families to start a Special Education PTA for the county of Fairfax, Virginia.
Tara Bohle is our Director of Advocacy. She has a background in Retail Merchandising and Marketing, but is now home with her two children. She also has an extensive educational background including a Masters Degree in Business Management. Her youngest, Evan, was diagnosed with Congenital Bilateral Perisylvian Polymicrogyria at eighteen months old. After his diagnosis, she had a desire to do more. Currently, she serves on the board at Colorado’s Children Hospital where she creates programs and educates doctors and families about Rare Diseases. She is also on the board for the Family Support Council for Rocky Mountain Human Services. On this board, she focuses on providing programs and resources for special needs children and their families after the age of three. Besides her involvement in these two organizations, she teamed up with the National Organization for Rare Diseases (NORD) as well as two moms and together, they hosted Colorado’s First Rare Disease State Event. Tara has enjoyed her advocacy work and is excited to continue her work with PMGA in hopes to bring even more awareness to Polymicrogyria. She feels that together we can make a change and give PMG patients a voice.