The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.
The policy priorities and initiatives of the EveryLife Foundation are identified by the EveryLife Foundation Community Congress, to ensure that the policy priorities reflect the most pressing needs of the community. As a membership-based program dedicated to collaboratively bringing patient organizations, industry leaders, and other rare disease stakeholders together, the Community Congress acts as a strategic advisory council, providing advice and insight on urgent policy issues impacting the rare disease community.
The PMG Awareness Organization, Inc. is a proud partner of the EveryLife Foundation and member of the EveryLife Foundation Community Congress! To learn more, click the link above!