Know Rare

Know Rare was founded by members of the rare disease community to connect people with rare disease to new research that can help change their lives. 

With a partnership between Know Rare and the PMG Awareness Organization, Inc., we can:

– Connect our families with researchers and experts connected to Polymicrogyria. 

– Offer positive resources to those with rare disease,

-Offer an outlet to share your stories. 

-Provide another way connect with other families facing rare disease diagnosis. 

The Know Rare Website makes the statement “Rare But Not Alone”. We couldn’t have said it better ourselves! Connect directly with Know Rare by clicking their logo at the top of this page!