What Can You Do To Help?

PMG Awareness Organization consists of an all-volunteer Board of Directors who can always use more dedicated and passionate people!  The organization is always looking for people to lead or join various committees.  There are many great things in the works and many annual events that take place every year, which take a lot of preparation and planning such as our Annual Virtual 5K Run/Walk Event, Rare Disease Day, Giving Tuesday, etc.  It is our desire and goal to hold a bi-annual conference to bring PMG families and medical professionals together to discuss PMG and help find ways to advance research.  But we NEED YOUR HELP!

If you are interested in volunteering in some capacity, please contact us!  We want to hear from you and we encourage you to join our cause and spread the word in any way you can.

As always, any monetary contribution is greatly needed and appreciated.  You can make a tax deductible donation to the organization by clicking here.

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Please feel free to print out the Patient Brochure Information and take with you to all doctors and therapy appointments.  This information will let them know our organization exists and will help them provide others diagnosed in the future with hope, encouragement and most of all, support!