My daughter, Elsie, was diagnosed with polymicrogyria (PMG)
when she was about 9 months old, which would have been over 23 years ago. We noticed early on that she wasn’t rolling over or pushing up during tummy time, and she had little to no dexterity in her left hand. Additionally, her left leg developed differently than her right, causing her to walk on her left toes.
Throughout her childhood, Elsie underwent physical therapy, occupational therapy, Botox treatments, cast therapies, and wore orthotic braces. Despite these challenges, she never let them slow her down or diminish her happiness.
I’m truly amazed at how much research has been done over the past 20 years, making PMG more recognized, diagnosed, and understood. Elsie’s first pediatrician didn’t even know about this condition at the time of her diagnosis.
Now, at 23, Elsie is living her best life. Her only obstacle is that she has been unable to drive a car, but we are actively working on that.
Thank you to all the researchers and supporters dedicated to those with with PMG.
