Catrina Byrge, has a granddaughter, Brie, who was diagnosed with Polymicrogyria at three weeks of age. Since that time, she has sought to find out more information about PMG and was appalled at the lack of information and support that was available. She came to the realization that an organization such as PMGA was greatly needed. Catrina has over 23 years of nursing experience as well as prior experience working for nonprofit organizations and feels a great sense of dedication to the PMGA’s mission. She served a three year term as President and Chief Executive Officer from 2012 to 2015.
Brandy Davis, is the mother to Brie, who was diagnosed with Polymicrogyria shortly after she was born. Brandy is the Finance Coordinator for a major national nonprofit organization for children in the Northeast Florida area. She has a true heart for helping children and actively volunteers for several charitable children’s events. Brandy has a strong desire to bring about awareness of PMG and to help other families who are struggling with PMG related issues. She served a four year term as PMGA’s Vice President and Treasurer from 2012 – 2016.
Mel Rush, is the mother to Luke, who was diagnosed with Polymicrogyria while she was still pregnant (extremely rare) due to Luke’s enlarged skull on ultrasounds. Mel’s experience with PMG is different than most because she knew and had some resources available to her and Luke at birth. However, even with that knowledge, she soon found that it was only a drop in the bucket. There was so little information available, and what she did find was mostly technical medical papers that she didn’t understand. It is Mel’s greatest wish that when someone else tries to find answers, that PMGA will be there to help them find the information and resources they need. Mel is a dedicated teacher by profession and has a very special place in her heart for children. She served a two year term as PMGA’s Secretary from 2012- 2014.
Brie is Brandy’s daughter and Catrina’s granddaughter. She, along with all those affected by PMG, were the founders inspiration to create the PMG Awareness Organization with the hope that one day, a cure will be found. Until then, PMGA will work together to bring about awareness, to support research, to educate the public and to advocate for all those whos lives have been, or will be affected by Polymicrogyria in the future. Together, we can all make a difference!