Robin Hudson is our President and Chief Executive Officer. She is a proud stay-at-home mom to her son Sean. Sean was diagnosed with Microcephaly in utero but it wasn’t until age three that her and her husband learned that he also had Polymicrogyria. Through all the struggles and unanswered questions about his future, Robin has come to know that Sean is living proof that there is hope! Robin comes to us with experience in working with a nonprofit organization. She has a background in Retail Management as well as Retail Merchandising and she also studied Business as well as Sociology and Criminal Justice. She is truly dedicated to raising awareness of this disorder and finding ways to help other children and families who have been, or will be diagnosed in the coming days. Robin has been proudly serving on the Board of Directors since the organizations inception in 2012, and has held the position of President/CEO since 2015. She believes that “TOGETHER, we WILL unlock the Mysteries of PMG!”
Natalie Fregoso is our Vice President and Treasurer. She began serving on the board in 2014 as Secretary. She is a Legal Assistant for an estate planning law firm, wife and mother of two. Natalie could tell there was cause for concern for her youngest daughter, Gabrielle, when she was only four months of age. The family doctor wasn’t as concerned, but never doubt a mother’s intuition. Natalie kept voicing her concerns and was finally referred to a neurologist. The attentive neurologist immediately agreed with her concerns, did an MRI and Gabrielle was diagnosed with Bilateral Diffused Polymicrogyria in February of 2014. Gabrielle also suffers from hypotonia, developmental delays, Microcephaly and absent seizures. The family is very involved in their church and trust that standing together, and in prayer, we will unlock the mysteries of PMG.
Marissa Zamora is our Secretary. For the last 15 years, she has worked as a Claims Specialist for a Government Agency. Marissa is a devoted wife and mother and has three beautiful daughters. Her middle daughter, Vicki, was diagnosed with Bilateral Perisylvian Polymicrogyria in February of 2017 at the age of four years old. Both Marissa and her husband knew something was wrong when she wasn’t meeting typical milestones. Vicki’s speech therapist recommended an MRI and after receiving the go ahead from Vicki’s pediatrician, the test was scheduled. After undergoing the MRI, they received the diagnosis that evening. During the conversation with the Neurologist, it was suggested that they look up family support groups online, which is what brought her to the PMGA Organization. Marissa is very grateful for the resources and information that PMGA has provided as well as the opportunities they have been given to meet other PMG families. Marissa is passionate about doing her part to support the families who are affected by the disorder and hopes to make a difference in the lives she serves. She is honored to serve on the Board of Directors and she knows that together, we will do GREAT things!
Tara Bohle is our Director of Advocacy. She has a background in Retail Merchandising and Marketing, but is now home with her two children. She also has an extensive educational background including a Masters Degree in Business Management. Her youngest, Evan, was diagnosed with Congenital Bilateral Perisylvian Polymicrogyria at eighteen months old. After his diagnosis, she had a desire to do more. Currently, she serves on the board at Colorado’s Children Hospital where she creates programs and educates doctors and families about Rare Diseases. She is also on the board for the Family Support Council for Rocky Mountain Human Services. On this board, she focuses on providing programs and resources for special needs children and their families after the age of three. Besides her involvement in these two organizations, she teamed up with the National Organization for Rare Diseases (NORD) as well as two moms and together, they hosted Colorado’s First Rare Disease State Event. Tara has enjoyed her advocacy work and is excited to continue her work with PMGA in hopes to bring even more awareness to Polymicrogyria. She feels that together we can make a change and give PMG patients a voice.
Katie Cordes is our Director of Event Planning and Communications. She currently is a Project Manager for a technology consulting group and a mother of two beautiful daughters. Her youngest daughter, Qwenlynn, was diagnosed with Bilateral Perisylvian Polymicrogyria at 5 months old after having Tonic Clonic seizures and Infantile Spasms. Through the PMG Awareness Organization and the available social media groups, her family was able to learn about retrieving Qwenlynn’s newborn screening cards and confirm that the cause of her PMG was Cytomegalovirus. She is forever grateful for the available support and information and has a strong passion for raising awareness and connecting other families who are also affected by PMG.